Uploaded to inforM September 26, 1994 Subject: new resource on the Internet From: DonnaHope_Wegener@qm.server.ufl.edu (DonnaHope Wegener) A NEW RESOURCE on the Internet: a special list serv dedicated to children with special health care needs and their families. Staff at the Institute for Child Health Policy at the University of Florida ( supported by the Maternal and Child Health Bureau) are ready to launch the CSHCN-L. The purpose of the list serv is to develop an electronic forum for discussion of issues relevant to all children with special health care needs and their families, as well as pediatric health care in general. This list serv, by adopting a non-categorical rather than a condition-specific approach, provides a single location for discussion of issues pertinent to all children with special needs previously absent on the electronic superhighway. A second purpose of the list is to establish an electronic network of individuals with shared interests, both professional and personal, in the important issues for this special population of children and their families. A membership list will be constructed and maintained in an archive for access by subscribers. Each individual is encouraged to complete the short bio which will be disseminated within 1-2 weeks of subscribing. Given the current national debates about health care reform, the list will initially focus on health care reform and its impact on children, especially children with special health care needs. The list members will have the opportunity to examine the salient issues presented by this special population of children for health care reform, especially the implications of managed care and managed competition environments for these children. If you are aware of research conducted in this area, have knowledge of a private, managed care arrangement that has effectively served these children or have personal observations on this topic, please post the information to the list. To subscribe to CSHCN-L, send the following message to listserv@nervm.nerdc.ufl.edu or listserv@nervm.bitnet Ignore the "Subject" header of the email and type a one line command in the body of the message subscribe CSHCN-L your first name your last name. You will be sent an immediate confirmation notice that you have been added to the list of subscribers. For additional information about the list serv, CSHCN-L, or about the Institute for Child Health Policy, contact Donna Hope Wegener, Project Coordinator by telephone at 904/392-5904, ext. 242 or by electronic mail at the following address: DonnaHope_Wegener@qm.server.ufl.edu CSHCN-L CSHCN-L CSHCN-L CSHCN-L CSHCN-L CSHCN-L CSHCN-L Institute for Child Health Policy 5700 SW 34th Street, Suite 323 Gainesville, Florida 32608 904/392-5904 904/392-8822 Facsimile CSHCN-L CSHCN-L CSHCN-L CSHCN-L CSHCN-L CSHCN-L CSHCN-L